"Building Actionable Rare Disease Registries in the age of EHRs to Power ..."

Steven E. Labkoff et al. (2020)

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DOI: —

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type: Conference or Workshop Paper

metadata version: 2024-04-17

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  - https://dblp.org/rec/conf/amia/LabkoffREB20
Steven E. Labkoff, Leon Rozenblit, Alexander Elbert, Rimma Belenkaya:
Building Actionable Rare Disease Registries in the age of EHRs to Power Personalized Medicine: Lessons Learned in Standards, Data Models, Data Engineering, Patient Inclusion, and Regulatory Challenges. AMIA 2020

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