"A "pivot" Model to set up Large Scale Rare Diseases Information Systems: ..."

Laurent Toubiana et al. (2015)

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DOI: 10.3233/978-1-61499-512-8-887

access: open

type: Conference or Workshop Paper

metadata version: 2024-10-06

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Laurent Toubiana, Adrien Ugon, Alessandra Giavarini, Jérémie Riquier, Jean Charlet, Xavier Jeunemaître, Pierre-François Plouin, Marie-Christine Jaulent:
A "pivot" Model to set up Large Scale Rare Diseases Information Systems: Application to the Fibromuscular Dysplasia Registry. MIE 2015: 887-891

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